About Cystic Fibrosis Research, Inc. (CFRI)
CFRI funds research, provides educational and personal support, and spreads awareness of cystic fibrosis, a life-threatening genetic disease, while seeking to inform, engage and empower the CF community to reach the highest possible quality of life. CFRI provides funds innovative research that has led to some of the most groundbreaking developments in the treatment of CF, including new CFTR-modulating therapies. CFRI also provides educational programs and resources, including its annual National CF Family Education Conference, the CF Community Voices podcast series, its newsletter, CFRI Community, and Spanish-language version, CFRI Comunidad. CFRI provides psycho-social support to those impacted by the disease through its online Mindfulness Based Stress Reduction classes, support for individual counseling, CF Caregivers Support Groups, and retreats for mothers of those with CF and for adults with CF. CFRI also raises awareness of cystic fibrosis on a national level and and advocates for access to quality affordable healthcare for those with CF. CFRI is the CF community's partner in living. Its tagline: Research for Living ~ Partners for Life.