The CFRI CF Community Voices Podcast

Awareness and Advocacy for 50 Years — CFRI Advocacy Film 2026

For 50 years, CFRI has been a partner in living for the cystic fibrosis (CF) community. Through national awareness campaigns, CF research funding, education and support services, and advocacy at the state and national levels, CFRI aims to elevate the needs of our CF community members and find solutions to the challenges faced. Watch CFRI’s 2025 Advocacy & Awareness film here to learn more about how we are making a difference alongside our diverse and resilient community.

Funding for this awareness campaign was provided by Viatris, Genentech, Vertex Pharmaceuticals, Bucks County CF Alliance, and the Partnership to Improve Patient Care.

Cystic Fibrosis in the South Asian Community (Audio)

Cystic fibrosis (CF) impacts people of every race and ethnicity, including members of the South Asian community. Due to the common misperception of CF as a disease impacting only those of European descent, many individuals suffer years without a diagnosis and face barriers to accessing emerging treatments. This powerful film highlights the voices of individuals of South Asian descent living with CF as they share their personal journeys and the challenges they have faced.

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

This film was made possible through educational grants provided by Genetech, AbbVie, Viatris, ReCode, and Gilead Sciences.

Cystic Fibrosis in the South Asian Community (Video)

Cystic fibrosis (CF) impacts people of every race and ethnicity, including members of the South Asian community. Due to the common misperception of CF as a disease impacting only those of European descent, many individuals suffer years without a diagnosis and face barriers to accessing emerging treatments. This powerful film highlights the voices of individuals of South Asian descent living with CF as they share their personal journeys and the challenges they have faced.

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

This film was made possible through educational grants provided by Genetech, AbbVie, Viatris, ReCode, and Gilead Sciences.

The Changing Landscape of Nutrition for People with Cystic Fibrosis — Kristi Cheng, MPH RD (Audio)

Highly effective modulator therapies and other treatment advancements have significantly improved life expectancy for many people with cystic fibrosis (CF). In this podcast, registered CF dietician Kristi Cheng discusses dietary patterns linked to healthy aging and reduced risks of chronic diseases, such as diabetes, heart disease, and cancer. Cheng explores how the legacy CF diet—otherwise known as the "McDonald's Diet"—can be practically adapted to meet the nutritional needs of a longer-living CF population focused on sustaining health and preventing comorbidities.

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

The Changing Landscape of Nutrition for People with Cystic Fibrosis — Kristi Cheng, MPH RD (Video)

Highly effective modulator therapies and other treatment advancements have significantly improved life expectancy for many people with cystic fibrosis (CF). In this podcast, registered CF dietician Kristi Cheng discusses dietary patterns linked to healthy aging and reduced risks of chronic diseases, such as diabetes, heart disease, and cancer. Cheng explores how the legacy CF diet—otherwise known as the "McDonald's Diet"—can be practically adapted to meet the nutritional needs of a longer-living CF population focused on sustaining health and preventing comorbidities.

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Audio)

In a 2023 study across five US CF centers, 33% of women with cystic fibrosis reported experiencing intimate partner violence (IPV) in their lifetime. This IPV awareness month, CF social worker Brooke Jones, PhD(c), LCSW, and an adult with CF discuss the impact of chronic illness on romantic relationships, the increased risk of IPV among people with CF, and how to access support.

For IPV support, call the national domestic violence hotline at 1(800)-799-7233, or text 'START' to 88788. thehotline.org

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

Intimate Partner Violence & Cystic Fibrosis — Brooke Jones PhD(c), LCSW & an Adult with CF (Video)

In a 2023 study across five US CF centers, 33% of women with cystic fibrosis reported experiencing intimate partner violence (IPV) in their lifetime. This IPV awareness month, CF social worker Brooke Jones, PhD(c), LCSW, and an adult with CF discuss the impact of chronic illness on romantic relationships, the increased risk of IPV among people with CF, and how to access support.

For IPV support, call the national domestic violence hotline at 1(800)-799-7233, or text 'START' to 88788. thehotline.org

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Video)

People living with cystic fibrosis face unique health challenges, especially when it comes to respiratory infections. In this podcast, Dr. Richard Moss provides data demonstrating which populations are most at risk of adverse health complications post-infection, and explores why vaccines for the flu, COVID-19, and RSV are essential tools for protecting those with CF.

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation 

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

Vaccines for the Cystic Fibrosis Patient — Richard Moss, MD (Audio)

People living with cystic fibrosis face unique health challenges, especially when it comes to respiratory infections. In this podcast, Dr. Richard Moss provides data demonstrating which populations are most at risk of adverse health complications post-infection, and explores why vaccines for the flu, COVID-19, and RSV are essential tools for protecting those with CF.

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation 

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.

Gut Microbiome & Cystic Fibrosis — Emily Yelencich, MS, RD (Video)

Many people with cystic fibrosis report gastrointestinal discomfort as a daily challenge and barrier to optimal quality of life. In this podcast, Emily Yelencich, MS, RD, provides an overview of the key differences within the microbiome of people with CF compared to the general population, and how those differences result in increased difficulties with digestion, reduced absorption of nutrients, lower lung function, and higher rates of colorectal cancer. Yelencich rounds out the conversation with useful diet, nutrition, and bowel regimen tips that can help inform conversations with one’s CF care team.

Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/do...

Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.

Funding for CF Community Voices 2025 has been provided to date by Viatris and Vertex Pharmaceuticals.