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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
2 hours ago
2 hours ago
This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in April, 2026. With the advent of highly effective modulator therapies, more females with CF are reaching peri-menopause, menopause, and post-menopause. In this podcast, adult with CF and researcher, Sandy Sufian, PhD, MPD, discusses findings from her study examining how these biological life stages impact females with CF compared to the general population. Dr. Sufian highlights the most commonly reported symptoms experienced during peri-menopause and post-menopause, explores the unique challenges faced by aging females with CF, and identifies research gaps she hopes future studies will address.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.
3 hours ago
3 hours ago
This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in April, 2026. With the advent of highly effective modulator therapies, more females with CF are reaching peri-menopause, menopause, and post-menopause. In this podcast, adult with CF and researcher, Sandy Sufian, PhD, MPD, discusses findings from her study examining how these biological life stages impact females with CF compared to the general population. Dr. Sufian highlights the most commonly reported symptoms experienced during peri-menopause and post-menopause, explores the unique challenges faced by aging females with CF, and identifies research gaps she hopes future studies will address.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/56NJC95, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for this CF Community Voices podcast has been provided to date by Viatris and Vertex Pharmaceuticals.
Wednesday May 13, 2026
Wednesday May 13, 2026
This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in April, 2026. The nutritional needs of people with cystic fibrosis differ from those of the general population. Even across people with CF, nutrition is highly personal, with multiple variables impacting an individual's regimen. In this podcast, Emily Yelencich, MS, RD—dietician at Stanford's adult CF center—discusses the caloric intakes, protein needs, lipid considerations, and hydration goals of people with CF, ranging from those who are undernourished to those who are well-nourished or over-nourished.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for CF Community Voices 2026 has been provided to date by Viatris and Vertex Pharmaceuticals.
Wednesday May 13, 2026
Wednesday May 13, 2026
This podcast was recorded at CFRI's Cystic Fibrosis Adult Retreat in April, 2026. The nutritional needs of people with cystic fibrosis differ from those of the general population. Even across people with CF, nutrition is highly personal, with multiple variables impacting an individual's regimen. In this podcast, Emily Yelencich, MS, RD—dietician at Stanford's adult CF center—discusses the caloric intakes, protein needs, lipid considerations, and hydration goals of people with CF, ranging from those who are undernourished to those who are well-nourished or over-nourished.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for CF Community Voices 2026 has been provided to date by Viatris and Vertex Pharmaceuticals.
Wednesday Apr 29, 2026
Wednesday Apr 29, 2026
Argentina has one of the highest incidences of cystic fibrosis (CF) in Latin America. In this podcast, Ezequiel Baran, MD, Head of Pulmonology and the Adult CF Center at Hospital Rossi in La Plata, Buenos Aires, discusses the landscape of CF diagnosis and care across the country. Dr. Baran shares the challenges people with CF face in Argentina, how the country is advancing its model of care, and the hopes he holds for the future.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/do...
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for this CF Community Voices podcast has been provided to date by Bruker Biomedical Systems, Viatris, and Vertex Pharmaceuticals.
Wednesday Apr 29, 2026
Wednesday Apr 29, 2026
Argentina has one of the highest incidences of cystic fibrosis (CF) in Latin America. In this podcast, Ezequiel Baran, MD, Head of Pulmonology and the Adult CF Center at Hospital Rossi in La Plata, Buenos Aires, discusses the landscape of CF diagnosis and care across the country. Dr. Baran shares the challenges people with CF face in Argentina, how the country is advancing its model of care, and the hopes he holds for the future.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/do...
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for this CF Community Voices podcast has been provided to date by Bruker Biomedical Systems, Viatris, and Vertex Pharmaceuticals.
Wednesday Apr 08, 2026
Wednesday Apr 08, 2026
Finding humor in difficult times can be a powerful coping tool. For people living with CF, it can bring levity to experiences that are often confusing, frustrating, and painful. In this podcast, Mimi Salonen, an adult with CF, shares how pursuing stand-up comedy became both a creative outlet and a way to fulfill a lifelong dream, all while raising awareness about CF and making audiences laugh along the way.
To see more of Mimi Salonen's content, visit https://mimisalonen.com/. Video content of Mimi's stand-up comedy shows was taken from her Mortified set in Denver and can be found here: https://www.youtube.com/watch?v=vuIj6b5d_x0&t=905s.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for CF Community Voices 2026 has been provided to date by Viatris and Vertex Pharmaceuticals.
Wednesday Apr 08, 2026
Wednesday Apr 08, 2026
Finding humor in difficult times can be a powerful coping tool. For people living with CF, it can bring levity to experiences that are often confusing, frustrating, and painful. In this podcast, Mimi Salonen, an adult with CF, shares how pursuing stand-up comedy became both a creative outlet and a way to fulfill a lifelong dream, all while raising awareness about CF and making audiences laugh along the way.
To see more of Mimi Salonen's content, visit https://mimisalonen.com/. Video content of Mimi's stand-up comedy shows was taken from her Mortified set in Denver and can be found here: https://www.youtube.com/watch?v=vuIj6b5d_x0&t=905s.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for CF Community Voices 2026 has been provided to date by Viatris and Vertex Pharmaceuticals.
Wednesday Mar 04, 2026
Wednesday Mar 04, 2026
Cystic fibrosis (CF) is the most common fatal genetic disease in the United States. CF impacts people of every race and ethnicity, yet outdated information and inadequate newborn screening programs perpetuate the misconception that CF only impacts people of European descent. CFRI remains steadfast in our commitment to spotlighting and supporting the needs of every person with CF—ensuring that timely diagnoses, supportive care, developing therapies, useful resources, and opportunities for connection are made accessible for all. For more information about CFRI's diversity and inclusion program, visit www.cfri.org/diversity-and-inclusion.
This film was made possible through educational grants provided by Viatris and Genentech.
Monday Mar 02, 2026
Monday Mar 02, 2026
March is colorectal cancer awareness month—a time to spotlight the increased risk people with CF and CF carriers face when it comes to developing colon cancer. In this podcast, Jennifer Kyle, an adult with CF, shares the moment she learned that malignant polyps had been found in her colon after finally undergoing a routine screening. Urging others to speak with their care teams and get screened early, Jennifer highlights that colonoscopies aren't just boxes to check on a list but are life-saving diagnostic tools. For more information about CF and colon cancer, visit https://curecf.cfri.org/3rkzjuxn.
Click here to donate to CFRI and support the cystic fibrosis community worldwide: https://cfri.app.neoncrm.com/forms/donation
Your thoughts are valuable to us and will help with future podcast planning! Respond to our short survey https://www.surveymonkey.com/r/MPYLX9F, and you’ll be entered in our quarterly drawing for a $25 Etsy gift card. Winners notified by email.
Funding for CF Community Voices 2026 has been provided to date by Viatris and Vertex Pharmaceuticals.