The CFRI CF Community Voices Podcast
CF-Related Tattoos and the Stories Behind Them

CF-Related Tattoos and the Stories Behind Them

April 27, 2022

Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.


CF-Related Tattoos and the Stories Behind Them (Audio)

CF-Related Tattoos and the Stories Behind Them (Audio)

April 27, 2022

Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Tips for Improving the Colonoscopy Prep Experience

Tips for Improving the Colonoscopy Prep Experience

March 23, 2022

The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.


Tips for Improving the Colonoscopy Prep Experience (Audio)

Tips for Improving the Colonoscopy Prep Experience (Audio)

March 23, 2022

The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

A Global Impact: CF Vests 4 Life

A Global Impact: CF Vests 4 Life

February 23, 2022

In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.


A Global Impact: CF Vests 4 Life (Audio)

A Global Impact: CF Vests 4 Life (Audio)

February 23, 2022

In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Health Insurance Options When Reaching a Limiting Age - Beth Sufian, JD

Health Insurance Options When Reaching a Limiting Age - Beth Sufian, JD

February 23, 2022

Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.


Health Insurance Options When Reaching a Limiting Age - Beth Sufian, JD (Audio)

Health Insurance Options When Reaching a Limiting Age - Beth Sufian, JD (Audio)

February 23, 2022

Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

The Healing Power of Pets

The Healing Power of Pets

January 5, 2022

Pets and animal companions give their humans unconditional love and acceptance. The CDC acknowledges that they are known to offer several health benefits: lowering people’s stress and anxiety levels, while providing opportunities to get outdoors and meet new people. In this podcast, members of the CF community talk about ways their pets support them in their CF journey. 

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Viatris, Gilead Sciences, and Genentech.


The Healing Power of Pets (Audio)

The Healing Power of Pets (Audio)

January 5, 2022

Pets and animal companions give their humans unconditional love and acceptance. The CDC acknowledges that they are known to offer several health benefits: lowering people’s stress and anxiety levels, while providing opportunities to get outdoors and meet new people. In this podcast, members of the CF community talk about ways their pets support them in their CF journey. 

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Viatris, Gilead Sciences, and Genentech.

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