June 8, 2021
David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.
June 8, 2021
David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.
May 26, 2021
Cystic fibrosis impacts people of all races and ethnicities. While more common among people of European descent, it is estimated that 1 in 10,000 people of South Asian origin have CF, while exponentially more are carriers. Due to the misperception that CF does not occur within the South Asian community, misdiagnoses and late diagnoses are common. In this film, members of CFRI's community share their experiences and expertise to raise vital CF awareness.
Part of CFRI’s Faces of CF ~ Diversity and Inclusion Program, this film was made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.
Film produced by Brandon Delgado.
May 26, 2021
Cystic fibrosis impacts people of all races and ethnicities. While more common among people of European descent, it is estimated that 1 in 10,000 people of South Asian origin have CF, while exponentially more are carriers. Due to the misperception that CF does not occur within the South Asian community, misdiagnoses and late diagnoses are common. In this film, members of CFRI's community share their experiences and expertise to raise vital CF awareness.
Part of CFRI’s Faces of CF ~ Diversity and Inclusion Program, this film was made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.
Film produced by Brandon Delgado.
May 19, 2021
In this latest Q and A session, Rick Moss, MD, addresses questions related to vaccines, the recent CDC announcement regarding mask wearing, and what activities the CF community can feel safer participating in. This 15th podcast with Dr. Moss was recorded May 13, 2021.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Thanks to our sponsors, Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, and Gilead Sciences.
May 19, 2021
In this latest Q and A session, Rick Moss, MD, addresses questions related to vaccines, the recent CDC announcement regarding mask wearing, and what activities the CF community can feel safer participating in. This 15th podcast with Dr. Moss was recorded May 13, 2021.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Thanks to our sponsors, Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, and Gilead Sciences.
May 4, 2021
Ashley Ballou Bonnema, professional vocalist, founder and executive director of the nonprofit Breathe Bravely, and adult with cystic fibrosis, discusses the organization's flagship program, sINgSPIRE. This innovative approach to battling CF through the art of singing has inspired countless individuals with CF to find their voice. This is part-two of a two-part podcast. In this, part two, Ashley shares the incredible impact this program has had across the country and globe. Watch and be inspired to sing.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Made possible with support from Vertex Pharmaceuticals, Chiesi USA, Viatris, Genentech and Gilead Sciences.
May 4, 2021
Ashley Ballou Bonnema, professional vocalist, founder and executive director of the nonprofit Breathe Bravely, and adult with cystic fibrosis, discusses the organization's flagship program, sINgSPIRE. This innovative approach to battling CF through the art of singing has inspired countless individuals with CF to find their voice. This is part-two of a two-part podcast. In this, part two, Ashley shares the incredible impact this program has had across the country and globe. Watch and be inspired to sing.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Made possible with support from Vertex Pharmaceuticals, Chiesi USA, Viatris, Genentech and Gilead Sciences.
April 28, 2021
Ashley Ballou Bonnema, is a professional vocalist from Sioux Falls, South Dakota, head of a private voice studio, and founder and executive director of Breathe Bravely – a nonprofit organization dedicated to giving voice to cystic fibrosis. As an adult with CF, Ashley is a passionate advocate for our community. She created Breathe Bravely’s flagship program, sINgSPIRE, an innovative approach to contending with CF through the art of singing. This is a two-part podcast. In this, part one, Ashley shares her very personal, very moving story of life with CF, and how singing saved her life.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Made possible with support from Vertex Pharmaceuticals, Chiesi USA, Viatris, Genentech and Gilead Sciences.
April 28, 2021
Ashley Ballou Bonnema, is a professional vocalist from Sioux Falls, South Dakota, head of a private voice studio, and founder and executive director of Breathe Bravely – a nonprofit organization dedicated to giving voice to cystic fibrosis. As an adult with CF, Ashley is a passionate advocate for our community. She created Breathe Bravely’s flagship program, sINgSPIRE, an innovative approach to contending with CF through the art of singing. This is a two-part podcast. In this, part one, Ashley shares her very personal, very moving story of life with CF, and how singing saved her life.
If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766
Made possible with support from Vertex Pharmaceuticals, Chiesi USA, Viatris, Genentech and Gilead Sciences.
