Three Perspectives, One Purpose: Why Medicine Needs Memoir - Diane Shader Smith; Maryanne O’Hara; David Weill MD

Diane Shader Smith, Maryanne O'Hara and David Weill, will speak for the patient, the parent, and the provider respectively, and address the importance of memoir in medicine in the context of cystic fibrosis. Using David’s memoir, Exhale: Hope Healing and a Life in Transplant, Maryanne’s memoir, Little Matches: A Memoir of Grief and Light, and Mallory Smith’s memoir, Salt in My Soul: An Unfinished Life, they will discuss the role of narrative in medicine as it relates to the parent-provider relationship, bioethical issues affecting both privileged and underserved communities, systemic failings, scientific inquiry, and the role of palliative care from the time of diagnosis until end of life. This presentation was part of CFRI's Virtual 34th National CF Education Conference on July 31, 2021.

CFRI's 34th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.