The CFRI CF Community Voices Podcast

Dr. Amanda Bruce, Associate Professor and licensed clinical psychologist at the University of Kansas Medical Center, and Dr. Deborah Friedman, licensed clinical psychologist in the Massachusetts General Hospital Department of Psychiatry and Assistant Professor of Psychology at Harvard Medical School, discuss the use of cognitive-behavioral therapy (CBT) for reducing pain related to CF. They share findings from stakeholder interviews about the experience of living with both CF and chronic pain, as well as describe evidence-based mind-body approaches to pain management. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Carlos Milla, Professor of Pediatrics at Stanford University School of Medicine and the Director of the Stanford Cystic Fibrosis Center, and Dr. Nam Soo Joo, Senior Research Scientist in the Department of Pediatrics at Stanford University, present results from CFRI-funded research on improving CF airway mucociliary clearance. They discuss results from experiments with tracheae from ferrets and piglets. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Zachary Sellers, Assistant Professor of Pediatrics and the Associate Chair of Research in Pediatric Gastroenterology at Stanford University, presents results from CFRI-funded research on targeting IRBIT to correct bicarbonate secretory defects in CF. His work aims to identify new ways to treat CF-associated gastrointestinal complications regardless of the underlying CFTR mutation. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Steven Jonas, Assistant Professor in the Department of Pediatrics at the UCLA David Geffen School of Medicine and California NanoSystems Institute, presents results from CFRI-funded research on nanotechnologies for CF gene therapy. He presents a suite of tools and methods that could serve as building blocks for establishing CF gene therapy solutions. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Naren Kumar, post-doctoral fellow in the lab of Dr. Suzanne Fleiszig at the University of California Berkeley, presents results from CFRI-funded research on intracellular diversification of Pseudomonas aeruginosa in chronic lung infections. He discusses findings from experiments using live timelapse imaging and molecular methods to determine genes and proteins expressed by bacteria during intracellular infection of epithelial cells. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Sriram Vaidyanathan, a principal investigator in the Center for Gene Therapy at the Abigail Wexner Research Institute at Nationwide Children’s Hospital in Ohio, presents results from CFRI-funded research on airway stem cell transplantation into the sinuses using fibrinogen scaffolds. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Dr. Paul Bollyky, an Associate Professor and an infectious disease physician at Stanford University, presents results from CFRI-funded research on the development of phage therapy for antimicrobial-resistant infections in CF. He discusses a novel approach to design effective, broad-spectrum phage cocktails that relies on combining phages with different, complimentary receptors. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Carl Robinson and Matt DeFina discuss the rewards and challenges of raising children when one has CF. Moderated by Mary Helmers, RN, they describe their different paths to parenthood, and answer questions. This episode is a recording of a webinar from September 2023.

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CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences and Viatris.