The CFRI CF Community Voices Podcast

Skin Cancer 101: How To Spot It, How To Treat It, How To Beat It - Jennifer Wang, MD

Skin cancer is a risk for everyone, but in particular for those with cystic fibrosis post-transplant. Learn valuable tips to protect yourself from Dr. Jennifer Wang, MD, Clinical Assistant Professor of Dermatology at Stanford, who specializes in melanoma, non-melanoma skin cancers, and cutaneous lymphomas. Dr. Wang takes special interest in skin cancer surveillance and treatment in high-risk populations, such as cystic fibrosis and solid organ transplant recipients.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, and Viatris.

Skin Cancer 101: How To Spot It, How To Treat It, How To Beat It - Jennifer Wang, MD (Audio)

Skin cancer is a risk for everyone, but in particular for those with cystic fibrosis post-transplant. Learn valuable tips to protect yourself from Dr. Jennifer Wang, MD, Clinical Assistant Professor of Dermatology at Stanford, who specializes in melanoma, non-melanoma skin cancers, and cutaneous lymphomas. Dr. Wang takes special interest in skin cancer surveillance and treatment in high-risk populations, such as cystic fibrosis and solid organ transplant recipients.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, and Viatris.

CF Vests Worldwide: Changing Lives One Vest at a Time (Video)

Rod Spadinger and Joshua Bauder share the inspirational work of CF Vests Worldwide, which ships vests to individuals with CF in developing countries, who have no access to vests and medical equipment. Josh, who lives in Thailand, shares his experiences caring for his young daughter with CF. Meet the people whose lives are changed thanks to this organization's mission-driven work.  

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, Gilead Sciences, and Viatris.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

 

CF Vests Worldwide: Changing Lives One Vest at a Time (Audio)

Rod Spadinger and Joshua Bauder share the inspirational work of CF Vests Worldwide, which ships vests to individuals with CF in developing countries, who have no access to vests and medical equipment. Josh, who lives in Thailand, shares his experiences caring for his young daughter with CF. Meet the people whose lives are changed thanks to this organization's mission-driven work.  

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, Gilead Sciences, and Viatris.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

Nicholas Kelly - Rise Up For A Dream

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his freestyling "sauce.” Enjoy his inspirational freestyle artistry entitled “Rise Up For A Dream”, and learn how you can empower and express your unique voice.

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, and Viatris.

2022 CFRI Advocacy Film

Cystic fibrosis (CF) has been diagnosed in over 40,000 people in the United States. This brief film highlights symptoms, the diversity of our community, and the work of the Cystic Fibrosis Research Institute (CFRI) to ensure all people with cystic fibrosis have access to needed therapies.  

This film was made possible through educational grants from Vertex Pharmaceuticals, AbbVie, Gilead Sciences, Ionis Pharmaceuticals, and Genentech.

Enfrentando al Diagnostico - Alicia Maciel y Gina Serrato

Enfrentar un diagnóstico de fibrosis quística puede ser extremadamente aterrador y desafiante. En este conmovedor podcast, dos madres de niños con fibrosis quística, Alicia Maciel y Gina Serrato, hablan sobre sus experiencias cuando se enteraron de que sus hijos tenían FQ, y lo que les ha ayudado a desarrollar resiliencia y fortaleza personal a lo largo del viaje para garantizar la mejor calidad de vida de sus hijos.

Por su generoso apoyo, un agradecimiento especial a: Vertex Pharmaceuticals, Genentech, Chiesi USA, Gilead Sciences, y Viatris.

Oral Health and CF - Dr. Martina Hayes

Oral health is key to the overall health of individuals living with cystic fibrosis. In this podcast, recorded at the 2022 CF Adult Retreat, Dr. Martina Hayes, Associate Professor at the Dublin Dental University Hospital in Ireland, discusses what is known about CF and oral health; explains links between CF and enamel defects, tooth decay, gum disease, and more; and offers ways to improve oral health.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Understanding Inflammation, Hormones and Stress with Ashe Milkovic

This episode features Ashe Milkovic, NTP, IC-FHS, FBCS, Founder amd CEO of The International Association for Functional Hormone Health. Learn about the primary roles of hormones in the body, and how stress and inflammation interfere with hormone health. Ashe also shares ways to lower stress hormones to increase better hormonal balance, decrease inflammation, and nourish healthier stress responses.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

CFRI-Funded Research: Advancing the Search for a Cure

Since CFRI awarded its first CF research grant to the legendary Paul Quinton, PhD, in 1977, CFRI has provided over $10 million to support innovative research at medical and academic institutions across the United States. In this film, current and recently funded CF researchers share about their work, the importance of continued focus on CF research, and the role CFRI has played in furthering their scientific projects and the search for a CF cure.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.