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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
Wednesday Jul 20, 2022
Wednesday Jul 20, 2022
In this first of CFRI’s series on Random Acts of Kindness, hear Julie Desch, MD, tell how three random acts of kindness changed her life’s trajectory and helped to fulfill her life’s passion. Keep an eye out on our social media and this podcast series for more good news and random acts of kindness, and let us know if you have a story you’d like to share.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Apr 27, 2022
Wednesday Apr 27, 2022
Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Apr 27, 2022
Wednesday Apr 27, 2022
Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Mar 23, 2022
Wednesday Mar 23, 2022
The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Mar 23, 2022
Wednesday Mar 23, 2022
The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Jan 05, 2022
Wednesday Jan 05, 2022
Pets and animal companions give their humans unconditional love and acceptance. The CDC acknowledges that they are known to offer several health benefits: lowering people’s stress and anxiety levels, while providing opportunities to get outdoors and meet new people. In this podcast, members of the CF community talk about ways their pets support them in their CF journey.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Viatris, Gilead Sciences, and Genentech.