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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
Wednesday Aug 10, 2022
Wednesday Aug 10, 2022
Dr. Steffanie Strathdee, an infectious disease epidemiologist at the University of California San Diego and co-director of the Center for Innovative Phage Applications and Therapeutics (IPATH), shares how she and her colleagues, in 2016, revived a hundred-year-old forgotten cure – phage therapy - to save her husband’s life from a deadly superbug infection. The case led to a newfound interest in phage therapy, the launch of the Center for Innovative Phage Applications and Therapeutics (IPATH), and the publication of Dr. Strathdee's memoir she wrote with her husband, The Perfect Predator: A Scientist’s Race to Save her Husband from a Deadly Superbug. Dr. Strathdee also spoke about challenges and future prospects for phage therapy for CF patients. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 29, 2022.
CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.
Wednesday Jul 20, 2022
Wednesday Jul 20, 2022
Levi Johnson, Registered Dietician, fierce bull rider, and individual living with CF, gives a general overview of what inflammation is and how living with CF causes chronic inflammation. Learn simple ways to combat chronic inflammation by making a few small adjustments in your daily routine. Even a small change can have a big impact.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Jul 20, 2022
Wednesday Jul 20, 2022
In this first of CFRI’s series on Random Acts of Kindness, hear Julie Desch, MD, tell how three random acts of kindness changed her life’s trajectory and helped to fulfill her life’s passion. Keep an eye out on our social media and this podcast series for more good news and random acts of kindness, and let us know if you have a story you’d like to share.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Apr 27, 2022
Wednesday Apr 27, 2022
Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Apr 27, 2022
Wednesday Apr 27, 2022
Tattoos represent an array of meaning in our community, from honoring strengths and perspectives, special dates and people, and acceptance and loss along the CF journey. In our latest video podcast, individuals share the personal stories behind their tattoos.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Mar 23, 2022
Wednesday Mar 23, 2022
The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Mar 23, 2022
Wednesday Mar 23, 2022
The risk of colon cancer for those with CF is extremely high; colonoscopies are our best tool for preventing this. In our latest video podcast, individuals share their personal tips and tricks for improving the colonoscopy experience.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
In this inspiring podcast, CF Vests 4 Life Executive Director Rod Spadinger is joined by Rabia Murtaza and Harini Seshadri to discuss the impact of this program which distributes donated vests and life-saving equipment to those with CF around the globe.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.
Wednesday Feb 23, 2022
Wednesday Feb 23, 2022
Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.
If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY
CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.