The CFRI CF Community Voices Podcast

In part 2 of this inspiring podcast, the athletes with CF, all of whom have received double lung transplants, share more about their experiences participating in the Transplant Games. Hear their perspectives on self-care, motivation, and survivor’s guilt. These games provide transplant recipients a chance to honor their donors and demonstrate what their gift means to them. The Transplant games brings out the best in everyone and serves to increase awareness for organ donation. Watch and be inspired!

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

In this inspiring podcast, meet several phenomenal athletes with CF, all of whom have received double lung transplants, who share their experiences participating in the Transplant Games. These games provide transplant recipients to honor their donors and demonstrate what their gift means to them. The Transplant games bring out the best in everyone. Watch and be inspired!

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

In this webinar, recorded on August 23, 2022, Diane Shader Smith, director Will Battersby, and medical ethnographer Rebecca Mueller, PhD, met online for a dynamic discussion about the impact of the documentary film, Salt In My Soul. How has the film impacted viewers globally? What has been its broader impact upon antimicrobial resistance research and awareness? After a roundtable discussion, questions from the audience were answered.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Dr. Sriram Vaidyanathan, a postdoctoral scholar at the Porteus lab at Stanford University, presents results from CFRI-funded research on identifying biomaterials that enable the transplantation of gene corrected airway stem cells to treat CF. He presents findings from experiments transplanting upper airway basal stem cells into immunocompromised mice using fibrinogen-based scaffolds. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Dr. Christine Hachem, Professor of Medicine in the Division of Gastroenterology at Saint Louis University, presents an overview on GI cancers with cystic fibrosis. With improvements in therapies for CF, there has been an increase in GI cancers in people with CF, the most common of which is colorectal cancer. Dr. Hachem details the epidemiology, etiology and risk factors for GI cancers in CF, as well as current screening recommendations. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Dr. Stephen Aller, Associate Professor at the Department of Pharmacology and Toxicology at the University of Alabama at Birmingham, presents results from CFRI-funded research on the role of CFTR Arginine-933 in folding, gating and potentiator drug binding. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Dr. Sriram Vaidyanathan, a postdoctoral scholar at the Porteus lab at Stanford University, presents results from CFRI-funded research on identifying biomaterials that enable the transplantation of gene corrected airway stem cells to treat CF. He presents findings from experiments transplanting upper airway basal stem cells into immunocompromised mice using fibrinogen-based scaffolds. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Dr. Christine Hachem, Professor of Medicine in the Division of Gastroenterology at Saint Louis University, presents an overview on GI cancers with cystic fibrosis. With improvements in therapies for CF, there has been an increase in GI cancers in people with CF, the most common of which is colorectal cancer. Dr. Hachem details the epidemiology, etiology and risk factors for GI cancers in CF, as well as current screening recommendations. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Dr. Stephen Aller, Associate Professor at the Department of Pharmacology and Toxicology at the University of Birmingham in Alabama, presents results from CFRI-funded research on the role of CFTR Arginine-933 in folding, gating and potentiator drug binding. This presentation was part of CFRI's Virtual 35th National CF Education Conference on July 30, 2022.

CFRI's 35th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

At Dr. Phan's conference presentation on complementary therapies (which can be viewed here) there was not enough time to address all questions, so Dr. Phan recorded a follow-up podcast to answer all the questions submitted by conference attendees.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.