The CFRI CF Community Voices Podcast

Nicole Irizarry, DPT, provides insight into stress management from a physical therapy perspective. This is the last in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Nicole Irizarry, DPT, provides demonstrations of exercises and stretching moves that are particularly important for people with CF. This is the fourth in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Nicole Irizarry, DPT, provides demonstrations of techniques to address pain and issues triggered and/or exacerbated by poor posture. This is the third in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move. 

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

CFRI, in partnership with the National Organization of African Americans with Cystic Fibrosis (NOAACF), hosted a live webinar featuring members of CFRI's CF Diversity and Inclusion Committee who shared their rare within rare experiences, including challenges faced and opportunities moving forward.

This event was made possible through support from Vertex Pharmaceuticals, Genentech, Gilead Sciences, and Chiesi USA.

Nicole Irizarry, DPT, provides demonstrations of techniques to address pelvic floor weakness and urinary incontinence. This is the second in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

CFRI works tirelessly to raise awareness of CF and advocate for access to quality care and therapies. The organization is committed to supporting innovative CF research to find a cure, while offering education and support programs to improve our community's health and quality of life. Watch and be inspired. Please join us in our efforts! www.cfri.org

Filmed and edited by Brandon Delgado.

This film was created through educational grants from Vertex Pharmaceuticals, Gilead Sciences, AbbVie, Ionis Pharmaceuticals, and Genentech.

CF impacts people of every race and ethnicity, including members of the African American, East Asian, South Asian and Hispanic/Latinx communities. Due to the misperception of CF as a disease impacting only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech, with additional translation support provided by Genentech.

In this podcast, Anna Payne, 34 years old and living with cystic fibrosis, shares her harrowing journey as she battles stage-4 colon cancer. People with cystic fibrosis have 5 to 10 times the rates of colon cancer than the general population, and the GI symptoms that are a hallmark of CF often mask the symptoms of colon cancer. In sharing her story Anna hopes to motivate others with CF to seek earlier colonoscopies to prevent colon cancer. "This is my story," she says, "but it does not need to be yours."

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

In this podcast, Anna Payne, 34 years old and living with cystic fibrosis, shares her harrowing journey as she battles stage-4 colon cancer. People with cystic fibrosis have 5 to 10 times the rates of colon cancer than the general population, and the GI symptoms that are a hallmark of CF often mask the symptoms of colon cancer. In sharing her story Anna hopes to motivate others with CF to seek earlier colonoscopies to prevent colon cancer. "This is my story," she says, "but it does not need to be yours."

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

CF impacts people of every race and ethnicity, including members of the East Asian community, yet due to the misperception of CF as a disease impacting only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech, with additional translation support provided by Genentech.