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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
Wednesday Apr 29, 2020
Wednesday Apr 29, 2020
Rick Moss, MD, CF clinician and researcher at Stanford, answers CF and COVID-19-related questions submitted by our community over the past week related to antibody tests, impacts on those with CF, and much more. Dr. Moss has generously offered to continue these Q&A sessions to keep us informed. Please feel free to submit additional questions by email to cfri@cfri.org. This most recent session was recorded on April 29, 2020.
We thank Vertex Pharmaceuticals, Gilead Sciences, Genentech, and Chiesi USA for their support of these podcasts.
Tuesday Apr 28, 2020
Tuesday Apr 28, 2020
Dr. Vinayak Jha, Physician of Pulmonary and Critical Care Medicine at the Adult CF center at California Pacific Medical Center in San Francisco, discusses the impact of cystic fibrosis upon bone health. Those with CF have high rates of osteopenia and osteoporosis, often occurring at a very young age. In this podcast, Dr. Jha discusses the reasons behind this and available interventions to maintain bone health.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Gilead Sciences.
Tuesday Apr 28, 2020
Tuesday Apr 28, 2020
Dr. Vinayak Jha, Physician of Pulmonary and Critical Care Medicine at the Adult CF center at California Pacific Medical Center in San Francisco, discusses the impact of cystic fibrosis upon bone health. Those with CF have high rates of osteopenia and osteoporosis, often occurring at a very young age. In this podcast, Dr. Jha discusses the reasons behind this and available interventions to maintain bone health.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Gilead Sciences.
Wednesday Apr 22, 2020
Wednesday Apr 22, 2020
Rick Moss, MD, CF clinician and researcher at Stanford, answers CF and COVID-19-related questions submitted by our community over the past week related to antibody tests, impacts on those with CF, and much more. Dr. Moss has generously offered to continue these Q&A sessions to keep us informed. Please feel free to submit additional questions by email to cfri@cfri.org. This most recent session was recorded on April 22, 2020.
We thank Vertex Pharmaceuticals, Gilead Sciences, Genentech, and Chiesi USA for their support of these podcasts.
Wednesday Apr 15, 2020
Wednesday Apr 15, 2020
Rick Moss, MD, CF clinician and researcher at Stanford, answers CF and COVID-19-related questions submitted by our community over the past week. Dr. Moss has generously offered to continue these Q&A sessions to keep us informed. Please feel free to submit additional questions by email to cfri@cfri.org. This most recent session was recorded on April 15, 2020.
We thank Vertex Pharmaceuticals, Gilead Sciences, Genentech, and Chiesi USA for their support of these podcasts.
Wednesday Apr 01, 2020
Wednesday Apr 01, 2020
In this second Q&A session, recorded April 1, Rick Moss, MD, CF clinician and researcher at Stanford, answers CF and COVID-19-related questions submitted by our community over the past week. Dr. Moss has generously offered to continue these sessions to keep us informed.
Please feel free to submit additional questions by email to cfri@cfri.org.
We thank Vertex Pharmaceuticals, Gilead Sciences, Genentech, and Chiesi USA for their support of these podcasts.
Wednesday Mar 25, 2020
Wednesday Mar 25, 2020
At CFRI's highly informative town hall meeting about CF and COVID-19 on March 17, we had more questions from participants than time allowed us to answer. As a follow-up, Rick Moss, MD, of Stanford University, answers those remaining questions.
If you still have questions after watching both the town hall meeting and this Q&A video, please feel free to submit them by email to cfri@cfri.org. We will work on releasing another Q&A session with Dr. Moss in the near future.
Wednesday Mar 25, 2020
Wednesday Mar 25, 2020
At CFRI's highly informative town hall meeting about CF and COVID-19 on March 17, we had more questions from participants than time allowed us to answer. As a follow-up, Rick Moss, MD, of Stanford University, answers those remaining questions.
If you still have questions after watching both the town hall meeting and this Q&A video, please feel free to submit them by email to cfri@cfri.org. We will work on releasing another Q&A session with Dr. Moss in the near future.
Wednesday Mar 18, 2020
Wednesday Mar 18, 2020
On March 17, CFRI hosted a Town Hall discussion via Zoom and Facebook Live to provide COVID-19 information and resources to our CF community. Dr. Rick Moss, CF clinician and researcher at Stanford, and Dr. Yelizaveta Sher, psychiatrist at the Adult CF Center at Stanford provided overviews of the physical and mental health-related impacts of the virus on those with CF, and then answered questions from our community.
Wednesday Feb 26, 2020
Wednesday Feb 26, 2020
Because hand shaking is known to be a primary source for the transmission of disease, CFRI’s CF Adult Advisory Committee is launching a campaign to raise awareness of the hazards of hand shaking, with fun alternative means to say hello and goodbye. In this podcast, members of the Committee talk about issues they’ve encountered with our hand-shaking culture, and some ways they have found to work around it.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Gilead Sciences.
Music Credit: STEESH Track Name: "The Feelings" Music By: STEESH @ http://www.twitter.com/steeshhaggie Official "STEESH" YouTube Channel HERE - https://www.youtube.com/iamsteesh/?su….