The CFRI CF Community Voices Podcast

Dr. Rick Moss, Professor Emeritus of Pediatrics at Stanford University and retired Director of the Stanford Cystic Fibrosis Center, gives an update on key aspects of the pandemic currently relevant to CF: vulnerability to COVID in the CF community, transmission, vaccine availability and safety, breakthrough infections, variants, special considerations for the immunocompromised, and more. Dr. Moss reviews current evidence and recommendations, and gives a global outlook. This presentation was part of CFRI's Virtual 34th National CF Education Conference on July 31, 2021.

CFRI's 34th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

CFRI's 34 National Cystic Fibrosis Education Conference - "Illuminating the CF Journey" - took place virtually from July 30 to August 1, 2021. Francis Collins, MD, PhD, Director of the National Institutes of Health (NIH), delivered this welcoming address to the CF community via video.

The Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

CFRI's 34 National Cystic Fibrosis Education Conference - "Illuminating the CF Journey" - took place virtually from July 30 to August 1, 2021. Francis Collins, MD, PhD, Director of the National Institutes of Health (NIH), delivered this welcoming address to the CF community via video.

The Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and Ionis Pharmaceuticals.

Members of the cystic fibrosis and LGBTQIA community share their experiences and perspectives on life with CF, the challenges and deep rewards of coming out, and the importance of finding community. Pride Month is in June; Pride is year round.

Sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, Gilead Sciences, and Viatris.

Film edited by Brandon Delgado.

Members of the cystic fibrosis and LGBTQIA community share their experiences and perspectives on life with CF, the challenges and deep rewards of coming out, and the importance of finding community. Pride Month is in June; Pride is year round.

Sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, Gilead Sciences, and Viatris.

Film edited by Brandon Delgado.

In this informative podcast, Dr. Sriram Vaidyanathan discusses the incidence of cystic fibrosis among the Asian community, and research which indicates that CF incidence rates are far higher among South Asians than East Asians. Thanks to research conducted at Stanford, there is further evidence of the diversity of the cystic fibrosis community and the need for greater awareness among underrepresented communities and the medical community.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences and Vertex Pharmaceuticals.

Edited by Brandon Delgado.

In this informative podcast, Dr. Sriram Vaidyanathan discusses the incidence of cystic fibrosis among the Asian community, and research which indicates that CF incidence rates are far higher among South Asians than East Asians. Thanks to research conducted at Stanford, there is further evidence of the diversity of the cystic fibrosis community and the need for greater awareness among underrepresented communities and the medical community.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences and Vertex Pharmaceuticals.

Edited by Brandon Delgado.

David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.

David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.

Cystic fibrosis impacts people of all races and ethnicities. While more common among people of European descent, it is estimated that 1 in 10,000 people of South Asian origin have CF, while exponentially more are carriers. Due to the misperception that CF does not occur within the South Asian community, misdiagnoses and late diagnoses are common. In this film, members of CFRI's community share their experiences and expertise to raise vital CF awareness.

Part of CFRI’s Faces of CF ~ Diversity and Inclusion Program, this film was made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

Film produced by Brandon Delgado.