Episodes

Monday Oct 07, 2019
Monday Oct 07, 2019
In this insightful presentation, Mary Abigail Garcia, MD, Associate Clinical Professor at UC San Diego and Medical Director of Nutrition Support Services at Rady Children’s Hospital, gives a comprehensive overview of the different kinds of GI problems that affect people with CF. She talks about symptoms, diagnosis and treatment options of various GI complications, as well as the impact of nutrition. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Patient Panel: Navigating Cystic Fibrosis and Relationships
Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
A panel of four adults with CF (Isabel Stenzel Byrnes, Colleen Lewis, Emily Schaller, Bob Wright) talks about their experiences navigating cystic fibrosis and romantic relationships. They cover questions such as: At what point do you disclose that you have CF in a relationship? How have your partners handled the news of your diagnosis? The panel was part of CFRI's 32nd National CF Education Conference on July 27, 2019, and was moderated by Kate Yablonsky, LCSW.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
In this insightful presentation, David Nichols, MD, Medical Director of the TDN Coordinating Center and Associate Professor of Pediatrics at Seattle Children’s Hospital, gives a comprehensive overview of the different types of bacteria that commonly infect the airways of people with CF. He also describes the most common ways to treat them, and offers insight into current research on antibiotics, their interactions, and their long-term use. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Breathing Happiness - Travis Flores
Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
Travis Flores is an activist, philanthropist, actor, and children’s book author. He is also an adult with CF who has had two lung transplants and is currently waiting to be listed for his third. In this moving and inspirational presentation, he talks about how to find and maintain happiness in the face of all the obstacles that life with CF throws in his way. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Patient Panel: Navigating Cystic Fibrosis and Relationships (audio)
Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
A panel of four adults with CF (Isabel Stenzel Byrnes, Colleen Lewis, Emily Schaller, Bob Wright) talks about their experiences navigating cystic fibrosis and romantic relationships. They cover questions such as: At what point do you disclose that you have CF in a relationship? How have your partners handled the news of your diagnosis? The panel was part of CFRI's 32nd National CF Education Conference on July 27, 2019, and was moderated by Kate Yablonsky, LCSW.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
In this insightful presentation, David Nichols, MD, Medical Director of the TDN Coordinating Center and Associate Professor of Pediatrics at Seattle Children’s Hospital, gives a comprehensive overview of the different types of bacteria that commonly infect the airways of people with CF. He also describes the most common ways to treat them, and offers insight into current research on antibiotics, their interactions, and their long-term use. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 25, 2019
Breathing Happiness - Travis Flores (audio)
Wednesday Sep 25, 2019
Wednesday Sep 25, 2019
Travis Flores is an activist, philanthropist, actor, and children’s book author. He is also an adult with CF who has had two lung transplants and is currently waiting to be listed for his third. In this moving and inspirational presentation, he talks about how to find and maintain happiness in the face of all the obstacles that life with CF throws in his way. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.
CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Wednesday Sep 18, 2019
Motivating Behavior Change in Individuals with CF - Nadia Islam, PhD
Wednesday Sep 18, 2019
Wednesday Sep 18, 2019
In this presentation, Nadia Islam, PhD, a clinical psychologist at the Pediatric Center in Henrico, VA, gives a comprehensive overview about Motivational Interviewing (MI) as an approach to improve treatment adherence and motivate behavior change in individuals with CF. She introduces practical MI skills including reflective listening, emotion validation, and collaborative problem-solving. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Wednesday Sep 18, 2019
Innovations in CFRD Diagnosis and Treatment - Marina Basina, MD
Wednesday Sep 18, 2019
Wednesday Sep 18, 2019
Marina Basina, MD, Clinical Associate Professor at Stanford University Medical Center, gives an insightful presentation on Cystic Fibrosis Related Diabetes (CFRD), one of the most common complications of CF. Dr. Basina’s talk covers aspects including the relationship between CFRD and pulmonary function, nutrition, and technologies for diabetes management. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Wednesday Sep 18, 2019
Motivating Behavior Change in Individuals with CF - Nadia Islam, PhD (audio)
Wednesday Sep 18, 2019
Wednesday Sep 18, 2019
In this presentation, Nadia Islam, PhD, a clinical psychologist at the Pediatric Center in Henrico, VA, gives a comprehensive overview about Motivational Interviewing (MI) as an approach to improve treatment adherence and motivate behavior change in individuals with CF. She introduces practical MI skills including reflective listening, emotion validation, and collaborative problem-solving. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.