The CFRI CF Community Voices Podcast

Town Hall Discussion on CF-related GI issues (Audio)

On September 26, 2019, CFRI hosted an online Town Hall Discussion on CF-related GI issues, during which participants from around the U.S. joined in to share their experiences with the subject. The meeting started with Michelle Stroebe, MS, RD, dietician at the Adult CF Center at Stanford, and Siri Vaeth, CFRI director. They set the stage for an online town hall-style discussion via Zoom.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Ask the Experts – Panel of Conference Presenters

A panel of six Conference speakers (Abigail Garcia, MD, Nadia Islam, PhD, David Nichols, MD, Steven Rowe, MD, MSPH, Emily Schaller, Isabel Stenzel Byrnes, LCSW, MPH) answers a wide variety of questions from the live audience as well as online viewers. The panel was part of CFRI's 32nd National CF Education Conference on July 28, 2019, and was moderated by Dr. Jeanie Hanley.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Ins and Outs of Gastrointestinal Issues in CF - Mary Abigail Garcia, MD

In this insightful presentation, Mary Abigail Garcia, MD, Associate Clinical Professor at UC San Diego and Medical Director of Nutrition Support Services at Rady Children’s Hospital, gives a comprehensive overview of the different kinds of GI problems that affect people with CF. She talks about symptoms, diagnosis and treatment options of various GI complications, as well as the impact of nutrition. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Ask the Experts – Panel of Conference Presenters (Audio)

A panel of six Conference speakers (Abigail Garcia, MD, Nadia Islam, PhD, David Nichols, MD, Steven Rowe, MD, MSPH, Emily Schaller, Isabel Stenzel Byrnes, LCSW, MPH) answers a wide variety of questions from the live audience as well as online viewers. The panel was part of CFRI's 32nd National CF Education Conference on July 28, 2019, and was moderated by Dr. Jeanie Hanley.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Ins and Outs of Gastrointestinal Issues in CF - Mary Abigail Garcia, MD (Audio)

In this insightful presentation, Mary Abigail Garcia, MD, Associate Clinical Professor at UC San Diego and Medical Director of Nutrition Support Services at Rady Children’s Hospital, gives a comprehensive overview of the different kinds of GI problems that affect people with CF. She talks about symptoms, diagnosis and treatment options of various GI complications, as well as the impact of nutrition. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Patient Panel: Navigating Cystic Fibrosis and Relationships

A panel of four adults with CF (Isabel Stenzel Byrnes, Colleen Lewis, Emily Schaller, Bob Wright) talks about their experiences navigating cystic fibrosis and romantic relationships. They cover questions such as: At what point do you disclose that you have CF in a relationship? How have your partners handled the news of your diagnosis? The panel was part of CFRI's 32nd National CF Education Conference on July 27, 2019, and was moderated by Kate Yablonsky, LCSW.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

CF Respiratory Infections: non-tuberculous mycobacteria, Small Colony Variant S. aureus, and Some Unexpected Consequences of Antibiotic Use - David Nichols, MD

In this insightful presentation, David Nichols, MD, Medical Director of the TDN Coordinating Center and Associate Professor of Pediatrics at Seattle Children’s Hospital, gives a comprehensive overview of the different types of bacteria that commonly infect the airways of people with CF. He also describes the most common ways to treat them, and offers insight into current research on antibiotics, their interactions, and their long-term use. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Breathing Happiness - Travis Flores

Travis Flores is an activist, philanthropist, actor, and children’s book author. He is also an adult with CF who has had two lung transplants and is currently waiting to be listed for his third. In this moving and inspirational presentation, he talks about how to find and maintain happiness in the face of all the obstacles that life with CF throws in his way. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Patient Panel: Navigating Cystic Fibrosis and Relationships (audio)

A panel of four adults with CF (Isabel Stenzel Byrnes, Colleen Lewis, Emily Schaller, Bob Wright) talks about their experiences navigating cystic fibrosis and romantic relationships. They cover questions such as: At what point do you disclose that you have CF in a relationship? How have your partners handled the news of your diagnosis? The panel was part of CFRI's 32nd National CF Education Conference on July 27, 2019, and was moderated by Kate Yablonsky, LCSW. 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

CF Respiratory Infections: non-tuberculous mycobacteria, Small Colony Variant S. aureus, and Some Unexpected Consequences of Antibiotic Use - David Nichols, MD (audio)

In this insightful presentation, David Nichols, MD, Medical Director of the TDN Coordinating Center and Associate Professor of Pediatrics at Seattle Children’s Hospital, gives a comprehensive overview of the different types of bacteria that commonly infect the airways of people with CF. He also describes the most common ways to treat them, and offers insight into current research on antibiotics, their interactions, and their long-term use. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.