
10.9K
Downloads
522
Episodes
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes

Jan 5, 2018
Jan 5, 2018
15 min
Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.

Jan 5, 2018
Jan 5, 2018
15 min
Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.

Dec 8, 2017
Dec 8, 2017
33 min
Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.

Dec 8, 2017
Dec 8, 2017
33 min
Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.

Nov 15, 2017

Nov 15, 2017

Oct 25, 2017
Oct 25, 2017
16 min
Jacob Fraker, CFRI's Legislative Analyst who lives with CF, discusses the development of his political awareness and advocacy efforts on behalf of the CF community, rare disease community and LGBTQ community.

Oct 25, 2017
Oct 25, 2017
16 min
Jacob Fraker, CFRI's Legislative Analyst who lives with CF, discusses the development of his political awareness and advocacy efforts on behalf of the CF community, rare disease community and LGBTQ community.

Sep 29, 2017
Sep 29, 2017
35 min
Jacob Fraker shares his life journey with CF. Currently working on his social work degree, Jacob is serving as CFRI's legislative analyst. Jacob shares the factors that motivated him to focus on his health and pursue his goals of service and advocacy for those with CF, the LGBTQ community, and others who need a voice.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech.

Sep 29, 2017
Sep 29, 2017
35 min
Jacob Fraker shares his life journey with CF. Currently working on his social work degree, Jacob is serving as CFRI's legislative analyst. Jacob shares the factors that motivated him to focus on his health and pursue his goals of service and advocacy for those with CF, the LGBTQ community, and others who need a voice.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech.
