The CFRI CF Community Voices Podcast

Aging in the New Age of Cystic Fibrosis - Richard Moss, MD (Audio)

Dr. Rick Moss, Professor Emeritus of Pediatrics at Stanford University and former Director of the Stanford CF Center, presents an overview of the challenges of aging in the modulator era of CF, such as diabetes, a variety of cancers, cardiovascular disease, obesity, osteoporosis, and other health challenges. He also presents CFRI’s new programmatic efforts to raise expertise of caregivers for aging CF patients as well as providing accurate information and empowerment to all people with CF everywhere. This presentation was part of CFRI's 37th National CF Education Conference.

CFRI's 37th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Viatris, Gilead Sciences, AbbVie, and the Boomer Esiason Foundation.

Modeling Epithelial Immune Cell Interactions in Cystic Fibrosis - Amy Ryan, PhD (video)

Dr. Amy Ryan, Associate Professor of Anatomy and Cell Biology and Associate Director of the Center for Gene Therapy at the University of Iowa, highlights potential mechanisms underlying immune complications observed in CF patients despite modulator treatment. She discusses an integrated approach combining physics-based models, gene-edited immune cells, and lung-on-chip technologies, which holds promise for advancing personalized cellular therapies for CF. This presentation was part of CFRI's 37th National CF Education Conference.

CFRI's 37th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Viatris, Gilead Sciences, AbbVie, and the Boomer Esiason Foundation.

Modeling Epithelial Immune Cell Interactions in Cystic Fibrosis - Amy Ryan, PhD (audio)

Dr. Amy Ryan, Associate Professor of Anatomy and Cell Biology and Associate Director of the Center for Gene Therapy at the University of Iowa, highlights potential mechanisms underlying immune complications observed in CF patients despite modulator treatment. She discusses an integrated approach combining physics-based models, gene-edited immune cells, and lung-on-chip technologies, which holds promise for advancing personalized cellular therapies for CF. This presentation was part of CFRI's 37th National CF Education Conference.

CFRI's 37th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Viatris, Gilead Sciences, AbbVie, and the Boomer Esiason Foundation.

Exploring Nucleic Acid Based Approaches to Treat People with CF - Jennifer Taylor-Cousar, MD, MSCS (video)

Dr. Jennifer Taylor-Cousar, a tenured professor of adult and pediatric pulmonary medicine and co-director of the Adult CF Program at National Jewish Health, gives a comprehensive overview of nucleic acid-based therapies (NABT), which aim to deliver the correct instructions to the cell for making a functional CFTR protein. She reviews lessons learned from historical NABT efforts, pre-clinical data supporting renewed clinical investigative efforts, and ongoing clinical trial designs and updates. This presentation was part of CFRI's 37th National CF Education Conference.

CFRI's 37th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Viatris, Gilead Sciences, AbbVie, and the Boomer Esiason Foundation.

Exploring Nucleic Acid Based Approaches to Treat People with CF - Jennifer Taylor-Cousar, MD, MSCS (audio)

Dr. Jennifer Taylor-Cousar, a tenured professor of adult and pediatric pulmonary medicine and co-director of the Adult CF Program at National Jewish Health, gives a comprehensive overview of nucleic acid-based therapies (NABT), which aim to deliver the correct instructions to the cell for making a functional CFTR protein. She reviews lessons learned from historical NABT efforts, pre-clinical data supporting renewed clinical investigative efforts, and ongoing clinical trial designs and updates. This presentation was part of CFRI's 37th National CF Education Conference.

CFRI's 37th National CF Education Conference was sponsored by Vertex Pharmaceuticals, Viatris, Gilead Sciences, AbbVie, and the Boomer Esiason Foundation.

Making Sense of GHPP and CCS - What Are the Benefits? - Lynne Kinst (Video)

California has two programs that can help CF patients with health care access, but many don’t utilize this support because they are not aware of their eligibility and potential assistance. Lynne Kinst, Executive Director of the Hemophilia Council of California, provides an overview of California’s Genetically Handicapped Person’s Program (GHPP) which helps adult beneficiaries with their health care costs, and California Children's Services, which helps those under 21. Learn about eligibility, the application process and enrollee benefits.

CF Community Voices is made possible through support from Viatris, Vertex Pharmaceuticals, and Gilead Sciences.

Making Sense of GHPP and CCS - What Are the Benefits? - Lynne Kinst (Audio)

California has two programs that can help CF patients with health care access, but many don’t utilize this support because they are not aware of their eligibility and potential assistance. Lynne Kinst, Executive Director of the Hemophilia Council of California, provides an overview of California’s Genetically Handicapped Person’s Program (GHPP) which helps adult beneficiaries with their health care costs, and California Children's Services, which helps those under 21. Learn about eligibility, the application process and enrollee benefits.

CF Community Voices is made possible through support from Viatris, Vertex Pharmaceuticals, and Gilead Sciences.

All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Video)

In this podcast, David Weill, MD, discusses his newest – and first fictional – book, All That Really Matters, in which transplant plays a central theme. Dr. Weill spent over 20 years as a transplant physician, including as Director of Stanford’s Center for Advanced Lung Disease and the Lung Transplant Program. In addition to sharing a reading from his novel, Dr. Weill discusses real life issues that are central themes of the novel, including unethical hospital practices that determine patients’ placement on the transplant wait list, and the need for more transparency in the allocation system for transplanted organs.

More information about Dr. Weill and his books may be found at www.davidweill.com.

CF Community Voices is made possible through support from Viatris, Vertex Pharmaceuticals, and Gilead Sciences.

All That Really Matters: A Conversation & Book Reading with Dr. David Weill (Audio)

In this podcast, David Weill, MD, discusses his newest – and first fictional – book, All That Really Matters, in which transplant plays a central theme. Dr. Weill spent over 20 years as a transplant physician, including as Director of Stanford’s Center for Advanced Lung Disease and the Lung Transplant Program. In addition to sharing a reading from his novel, Dr. Weill discusses real life issues that are central themes of the novel, including unethical hospital practices that determine patients’ placement on the transplant wait list, and the need for more transparency in the allocation system for transplanted organs.

More information about Dr. Weill and his books may be found at www.davidweill.com.

CF Community Voices is made possible through support from Viatris, Vertex Pharmaceuticals, and Gilead Sciences.

Demystifying the Colonoscopy Process - Jeffrey King, MD (Video)

Colonoscopy screenings are the #1 way to prevent colon cancer. In this recorded webinar, join Jeffrey King, MD, gastroenterologist at National Jewish Health, for a candid conversation about how to prepare for a successful colonoscopy as someone with CF, and what to expect during the procedure. By demystifying the colonoscopy process, it is hoped that more members of the CF community will schedule this potentially life-saving screening.

CF Community Voices is made possible to date through support from Viatris, Vertex Pharmaceuticals, and Gilead Sciences.