The CFRI CF Community Voices Podcast

Kristin A. Riekert, PhD, an expert on health regimen adherence issues who is from The Johns Hopkins School of Medicine in Baltimore, Maryland elaborated on adherence barriers and strategies for success for members of the cystic fibrosis community. This presentation was given at CFRI's 30th National Cystic Fibrosis Family Education Conference on July 28, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Karen von Berg, DPT, PT, Johns Hopkins School of Medicine, Baltimore, Maryland, gave a comprehensive overview of the vital role that physical therapy plays in the health and well-being of those with cystic fibrosis. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

John P. Clancy, MD, CF pulmonologist and researcher from Cincinnati Children’s Hospital, Cincinnati, Ohio provides a comprehensive overview of current cystic fibrosis therapies and potential new therapies that are advancing in the CF research pipeline. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 29, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Cathy Chacon, RN, BSN, presents at CFRI's 2017 National CF Family Education Conference on health issues impacting those with cystic fibrosis including bone health, diabetes, reproductive health, and cancer screening.
Ms. Chacon is the Adult CF Nurse Coordinator at National Jewish Health in Denver, Colorado. This presentation took place on July 29, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.