The CFRI CF Community Voices Podcast

Inside The Art Of Dominic Quagliozzi - Part 1 (Video)

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part One, Dominic shares how he first started on his journey expressing his lived experience through art, and how art has integrated in his approach and outlook on life. Hear how his journey through art helps him explore his experiences and forge his identity, create his own language of expression, reclaim agency over CF and transplantation, and deepen his connection to community.

https://www.instagram.com/artistdominic/

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences and Viatris.

Inside The Art Of Dominic Quagliozzi - Part 2 (Audio)

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part Two, Dominic shares a more in-depth look into his works, including the motivation and reasoning in the physical materials he incorporates into his work. He offers close ups on several pieces in his studio, and shares the inspiration behind the subject matter and materials expressed in his art.

https://www.instagram.com/artistdominic/

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences and Viatris.

Inside The Art Of Dominic Quagliozzi - Part 1 (Audio)

Dominic Quagliozzi is a captivating and renowned artist living with cystic fibrosis and the recipient of a double lung transplant. He works within several mediums including painting, drawing, as well as performance and video art. In Part One, Dominic shares how he first started on his journey expressing his lived experience through art, and how art has integrated in his approach and outlook on life. Hear how his journey through art helps him explore his experiences and forge his identity, create his own language of expression, reclaim agency over CF and transplantation, and deepen his connection to community.

https://www.instagram.com/artistdominic/

If you watched this episode, please tell us what you think at https://www.surveymonkey.com/r/FQC73S7

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences and Viatris.

Understanding and Managing Pain in CF: A Biopsychosocial Approach - Amanda Bruce, PhD; Deborah Friedman, PhD

Dr. Amanda Bruce, Associate Professor and licensed clinical psychologist at the University of Kansas Medical Center, and Dr. Deborah Friedman, licensed clinical psychologist in the Massachusetts General Hospital Department of Psychiatry and Assistant Professor of Psychology at Harvard Medical School, discuss the use of cognitive-behavioral therapy (CBT) for reducing pain related to CF. They share findings from stakeholder interviews about the experience of living with both CF and chronic pain, as well as describe evidence-based mind-body approaches to pain management. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Improving CF Airway Mucociliary Clearance: Toward Transition from Animals to Humans - Carlos Milla, MD; Nam Soo Joo, PhD

Dr. Carlos Milla, Professor of Pediatrics at Stanford University School of Medicine and the Director of the Stanford Cystic Fibrosis Center, and Dr. Nam Soo Joo, Senior Research Scientist in the Department of Pediatrics at Stanford University, present results from CFRI-funded research on improving CF airway mucociliary clearance. They discuss results from experiments with tracheae from ferrets and piglets. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Targeting IRBIT to Correct Bicarbonate Secretory Defects in Cystic Fibrosis - Zachary Sellers, MD, PhD

Dr. Zachary Sellers, Assistant Professor of Pediatrics and the Associate Chair of Research in Pediatric Gastroenterology at Stanford University, presents results from CFRI-funded research on targeting IRBIT to correct bicarbonate secretory defects in CF. His work aims to identify new ways to treat CF-associated gastrointestinal complications regardless of the underlying CFTR mutation. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Research

Voices From the Community

Nanotechnology Toolkits for Cystic Fibrosis Gene Therapies - Steven Jonas, MD, PhD

Dr. Steven Jonas, Assistant Professor in the Department of Pediatrics at the UCLA David Geffen School of Medicine and California NanoSystems Institute, presents results from CFRI-funded research on nanotechnologies for CF gene therapy. He presents a suite of tools and methods that could serve as building blocks for establishing CF gene therapy solutions. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.

Tolerance to Cell-Permeable Antibiotics: Intracellular Adaptations of Pseudomonas aeruginosa - Naren Kumar, PhD

Dr. Naren Kumar, post-doctoral fellow in the lab of Dr. Suzanne Fleiszig at the University of California Berkeley, presents results from CFRI-funded research on intracellular diversification of Pseudomonas aeruginosa in chronic lung infections. He discusses findings from experiments using live timelapse imaging and molecular methods to determine genes and proteins expressed by bacteria during intracellular infection of epithelial cells. This presentation was part of CFRI's 36th National CF Education Conference.

CFRI's 36th National CF Education Conference was sponsored by Viatris, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, Genentech, and the Boomer Esiason Foundation.