The CFRI CF Community Voices Podcast

Anna Payne‘s Colon Cancer Crusade

In this podcast, Anna Payne, 34 years old and living with cystic fibrosis, shares her harrowing journey as she battles stage-4 colon cancer. People with cystic fibrosis have 5 to 10 times the rates of colon cancer than the general population, and the GI symptoms that are a hallmark of CF often mask the symptoms of colon cancer. In sharing her story Anna hopes to motivate others with CF to seek earlier colonoscopies to prevent colon cancer. "This is my story," she says, "but it does not need to be yours."

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

Anna Payne‘s Colon Cancer Crusade (Audio)

In this podcast, Anna Payne, 34 years old and living with cystic fibrosis, shares her harrowing journey as she battles stage-4 colon cancer. People with cystic fibrosis have 5 to 10 times the rates of colon cancer than the general population, and the GI symptoms that are a hallmark of CF often mask the symptoms of colon cancer. In sharing her story Anna hopes to motivate others with CF to seek earlier colonoscopies to prevent colon cancer. "This is my story," she says, "but it does not need to be yours."

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

Cystic Fibrosis in the East Asian Community

CF impacts people of every race and ethnicity, including members of the East Asian community, yet due to the misperception of CF as a disease impacting only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech, with additional translation support provided by Genentech.

CFRI-Funded Research In Action

Since CFRI awarded its first CF research grant to the legendary Paul Quinton, PhD, in 1977, CFRI has provided over $10 million to support innovative research at medical and academic institutions across the United States. In this film, current and recently funded CF researchers share about their work, the importance of continued focus on CF research, and the role CFRI has played in furthering their scientific projects and the search for a CF cure.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

CFRI-Funded Research in Action (Audio)

Since CFRI awarded its first CF research grant to the legendary Paul Quinton, PhD, in 1977, CFRI has provided over $10 million to support innovative research at medical and academic institutions across the United States. In this film, current and recently funded CF researchers share about their work, the importance of continued focus on CF research, and the role CFRI has played in furthering their scientific projects and the search for a CF cure.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris.

Cystic Fibrosis in the Hispanic/Latinx Community (English)

CF impacts people of every race and ethnicity, including members of the Hispanic/Latinx community, yet due to the misperception of CF as a disease impacting only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

Health Insurance Options for the CF Community - Beth Sufian, JD

In this informative podcast, Beth Sufian, Director of the CF Legal Information Hotline and CF Social Security Project, discusses private insurance options, Medicaid and Medicare, and how to obtain coverage for the care you need.

NOTE: Beth recorded a podcast with CFRI last year specific to SSI/SSDI, which can be viewed at https://youtu.be/pXyeIhVa0G8

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris, with additional support for this episode provided by Gilead Sciences.

Health Insurance Options for the CF Community - Beth Sufian, JD (Audio)

In this informative podcast, Beth Sufian, Director of the CF Legal Information Hotline and CF Social Security Project, discusses private insurance options, Medicaid and Medicare, and how to obtain coverage for the care you need.

NOTE: Beth recorded a podcast with CFRI last year specific to SSI/SSDI, which can be viewed at https://youtu.be/pXyeIhVa0G8

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

CF Community Voices is sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, and Viatris, with additional support for this episode provided by Gilead Sciences.

Cystic Fibrosis in the African American Community

CF impacts people of every race and ethnicity, including African Americans, yet due to the misperception that the disease impacts only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences, while Dr. Jennifer Taylor-Cousar updates us on the true diversity of our community.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

Cystic Fibrosis in the African American Community (Audio)

CF impacts people of every race and ethnicity, including African Americans, yet due to the misperception that the disease impacts only those of European descent, many individuals go years without a diagnosis. In this moving film, CF community members share their experiences, while Dr. Jennifer Taylor-Cousar updates us on the true diversity of our community.

CFRI’s Faces of CF Diversity and Inclusion Program is sponsored by Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.