The CFRI CF Community Voices Podcast

Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Many young adults with CF remain on their parents' health insurance plan through the age of 26. But what happens next? In this information-packed podcast, Beth Sufian, attorney, and Director of the Cystic Fibrosis Social Security Project, and the CF Legal Information Hotline, shares multiple strategies for maintaining insurance coverage past the age of 26.

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

CF Community Voices is made possible through grants from Chiesi USA, Genentech, Vertex Pharmaceuticals, Gilead Sciences, and Viatris.

Pets and animal companions give their humans unconditional love and acceptance. The CDC acknowledges that they are known to offer several health benefits: lowering people’s stress and anxiety levels, while providing opportunities to get outdoors and meet new people. In this podcast, members of the CF community talk about ways their pets support them in their CF journey. 

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Viatris, Gilead Sciences, and Genentech.

Pets and animal companions give their humans unconditional love and acceptance. The CDC acknowledges that they are known to offer several health benefits: lowering people’s stress and anxiety levels, while providing opportunities to get outdoors and meet new people. In this podcast, members of the CF community talk about ways their pets support them in their CF journey. 

If you watch this episode, please let us know what you think at https://www.surveymonkey.com/r/KGB7PKY

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Viatris, Gilead Sciences, and Genentech.

Nicole Irizarry, DPT, provides insight into stress management from a physical therapy perspective. This is the last in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Nicole Irizarry, DPT, provides demonstrations of exercises and stretching moves that are particularly important for people with CF. This is the fourth in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

Nicole Irizarry, DPT, provides demonstrations of techniques to address pain and issues triggered and/or exacerbated by poor posture. This is the third in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move. 

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

CFRI, in partnership with the National Organization of African Americans with Cystic Fibrosis (NOAACF), hosted a live webinar featuring members of CFRI's CF Diversity and Inclusion Committee who shared their rare within rare experiences, including challenges faced and opportunities moving forward.

This event was made possible through support from Vertex Pharmaceuticals, Genentech, Gilead Sciences, and Chiesi USA.

Nicole Irizarry, DPT, provides demonstrations of techniques to address pelvic floor weakness and urinary incontinence. This is the second in a five-part interactive webinar series on various aspects of physical therapy. The session demonstrates exercises, so dress comfortably and get ready to move.

CFRI's CF Wellness Initiative is sponsored by Translate Bio, Viatris, Ionis Pharmaceuticals, Vertex Pharmaceuticals, and private donors.

CFRI works tirelessly to raise awareness of CF and advocate for access to quality care and therapies. The organization is committed to supporting innovative CF research to find a cure, while offering education and support programs to improve our community's health and quality of life. Watch and be inspired. Please join us in our efforts! www.cfri.org

Filmed and edited by Brandon Delgado.

This film was created through educational grants from Vertex Pharmaceuticals, Gilead Sciences, AbbVie, Ionis Pharmaceuticals, and Genentech.