The CFRI CF Community Voices Podcast

Innovations in CFRD Diagnosis and Treatment - Marina Basina, MD

Marina Basina, MD, Clinical Associate Professor at Stanford University Medical Center, gives an insightful presentation on Cystic Fibrosis Related Diabetes (CFRD), one of the most common complications of CF. Dr. Basina’s talk covers aspects including the relationship between CFRD and pulmonary function, nutrition, and technologies for diabetes management. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Motivating Behavior Change in Individuals with CF - Nadia Islam, PhD (audio)

In this presentation, Nadia Islam, PhD, a clinical psychologist at the Pediatric Center in Henrico, VA, gives a comprehensive overview about Motivational Interviewing (MI) as an approach to improve treatment adherence and motivate behavior change in individuals with CF. She introduces practical MI skills including reflective listening, emotion validation, and collaborative problem-solving. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Innovations in CFRD Diagnosis and Treatment - Marina Basina, MD (audio)

Marina Basina, MD, Clinical Associate Professor at Stanford University Medical Center, gives an insightful presentation on Cystic Fibrosis Related Diabetes (CFRD), one of the most common complications of CF. Dr. Basina’s talk covers aspects including the relationship between CFRD and pulmonary function, nutrition, and technologies for diabetes management. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Let’s Talk About Sex: Improving Sexual & Reproductive Health Care in CF - Traci Kazmerski, MD, MS

Dr. Traci Kazmerski, Assistant Professor of Pediatrics at UPMC Children's Hospital in Pittsburgh, PA, provides a comprehensive overview about sexual and reproductive health care needs of people with cystic fibrosis. Her talk includes general as well as disease-specific concerns, e.g. delayed puberty, problems with fertility, as well as complex challenges during pregnancy. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Let’s Talk About Sex: Improving Sexual & Reproductive Health Care in CF - Traci Kazmerski, MD, MS (Audio)

Dr. Traci Kazmerski, Assistant Professor of Pediatrics at UPMC Children's Hospital in Pittsburgh, PA, provides a comprehensive overview about sexual and reproductive health care needs of people with cystic fibrosis. Her talk includes general as well as disease-specific concerns, e.g. delayed puberty, problems with fertility, as well as complex challenges during pregnancy. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

The JEM Show: Living, Breathing & Succeeding in Life with CF - Video

Mixing equal parts wit and humor, Emily and Jerry shared their respective journeys with cystic fibrosis and the role that exercise and diet plays in their health. As founder of the Rock CF Foundation, Emily shares the role that running has had in her life. As an ambassador for the Boomer Esiason Foundation, Jerry shared the exciting role that Bike for Breath has had in raising awareness and funds for cystic fibrosis.

CFRI's 32nd National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, Ionis Pharmaceuticals, and the Boomer Esiason Foundation.

A Cut Above With Kasey Schumacher - Video

Kasey Schumacher is a licensed cosmetologist, owner of A Cut Above salon, spiritual medium, theater makeup artist, and a woman with cystic fibrosis. In this video she talks about her passion for her work, the challenges of running her own business, and the accommodations she has made to protect her health at work. Meet Kasey!

Filmed by Brandon Delgado

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

A Cut Above With Kasey Schumacher - Audio

Kasey Schumacher is a licensed cosmetologist, owner of A Cut Above salon, spiritual medium, theater makeup artist, and a woman with cystic fibrosis. In this video she talks about her passion for her work, the challenges of running her own business, and the accommodations she has made to protect her health at work. Meet Kasey!

Filmed by Brandon Delgado

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

CFRI Advocates in Action (Video)

In May, 2019, a group of CF advocates, including individuals with CF, parents of children with CF, and CF clinicians, gathered in Sacramento, California, to meet with their state assembly members and senators and raise awareness of CF and the challenges experienced by those living with the disease, including access to therapies and care. The day culminated with the Senate passing a resolution declaring May to be Cystic Fibrosis Awareness Month in the State of California. In this video, advocates share their reasons for participating in this impactful day.

Filmed and edited by Brandon Delgado.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA.

Break The Limits by Unwritten Stories | https://soundcloud.com/unwritten-stories
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US

CFRI Advocates in Action (Audio)

In May, 2019, a group of CF advocates, including individuals with CF, parents of children with CF, and CF clinicians, gathered in Sacramento, California, to meet with their state assembly members and senators and raise awareness of CF and the challenges experienced by those living with the disease, including access to therapies and care. The day culminated with the Senate passing a resolution declaring May to be Cystic Fibrosis Awareness Month in the State of California. In this video, advocates share their reasons for participating in this impactful day.

Filmed and edited by Brandon Delgado.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA.

Break The Limits by Unwritten Stories | https://soundcloud.com/unwritten-stories
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US