The CFRI CF Community Voices Podcast

Travis Flores is an activist, philanthropist, actor, and children’s book author. He is also an adult with CF who has had two lung transplants and is currently waiting to be listed for his third. In this moving and inspirational presentation, he talks about how to find and maintain happiness in the face of all the obstacles that life with CF throws in his way. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

A panel of four adults with CF (Isabel Stenzel Byrnes, Colleen Lewis, Emily Schaller, Bob Wright) talks about their experiences navigating cystic fibrosis and romantic relationships. They cover questions such as: At what point do you disclose that you have CF in a relationship? How have your partners handled the news of your diagnosis? The panel was part of CFRI's 32nd National CF Education Conference on July 27, 2019, and was moderated by Kate Yablonsky, LCSW. 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

In this insightful presentation, David Nichols, MD, Medical Director of the TDN Coordinating Center and Associate Professor of Pediatrics at Seattle Children’s Hospital, gives a comprehensive overview of the different types of bacteria that commonly infect the airways of people with CF. He also describes the most common ways to treat them, and offers insight into current research on antibiotics, their interactions, and their long-term use. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Travis Flores is an activist, philanthropist, actor, and children’s book author. He is also an adult with CF who has had two lung transplants and is currently waiting to be listed for his third. In this moving and inspirational presentation, he talks about how to find and maintain happiness in the face of all the obstacles that life with CF throws in his way. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

In this presentation, Nadia Islam, PhD, a clinical psychologist at the Pediatric Center in Henrico, VA, gives a comprehensive overview about Motivational Interviewing (MI) as an approach to improve treatment adherence and motivate behavior change in individuals with CF. She introduces practical MI skills including reflective listening, emotion validation, and collaborative problem-solving. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Marina Basina, MD, Clinical Associate Professor at Stanford University Medical Center, gives an insightful presentation on Cystic Fibrosis Related Diabetes (CFRD), one of the most common complications of CF. Dr. Basina’s talk covers aspects including the relationship between CFRD and pulmonary function, nutrition, and technologies for diabetes management. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

In this presentation, Nadia Islam, PhD, a clinical psychologist at the Pediatric Center in Henrico, VA, gives a comprehensive overview about Motivational Interviewing (MI) as an approach to improve treatment adherence and motivate behavior change in individuals with CF. She introduces practical MI skills including reflective listening, emotion validation, and collaborative problem-solving. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Marina Basina, MD, Clinical Associate Professor at Stanford University Medical Center, gives an insightful presentation on Cystic Fibrosis Related Diabetes (CFRD), one of the most common complications of CF. Dr. Basina’s talk covers aspects including the relationship between CFRD and pulmonary function, nutrition, and technologies for diabetes management. This presentation was part of CFRI's 32nd National CF Education Conference on July 28, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Dr. Traci Kazmerski, Assistant Professor of Pediatrics at UPMC Children's Hospital in Pittsburgh, PA, provides a comprehensive overview about sexual and reproductive health care needs of people with cystic fibrosis. Her talk includes general as well as disease-specific concerns, e.g. delayed puberty, problems with fertility, as well as complex challenges during pregnancy. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Dr. Traci Kazmerski, Assistant Professor of Pediatrics at UPMC Children's Hospital in Pittsburgh, PA, provides a comprehensive overview about sexual and reproductive health care needs of people with cystic fibrosis. Her talk includes general as well as disease-specific concerns, e.g. delayed puberty, problems with fertility, as well as complex challenges during pregnancy. This presentation was part of CFRI's 32nd National CF Education Conference on July 27, 2019.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.