The CFRI CF Community Voices Podcast

Mixing equal parts wit and humor, Emily and Jerry shared their respective journeys with cystic fibrosis and the role that exercise and diet plays in their health. As founder of the Rock CF Foundation, Emily shares the role that running has had in her life. As an ambassador for the Boomer Esiason Foundation, Jerry shared the exciting role that Bike for Breath has had in raising awareness and funds for cystic fibrosis.

CFRI's 32nd National CF Education Conference was sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, Ionis Pharmaceuticals, and the Boomer Esiason Foundation.

Kasey Schumacher is a licensed cosmetologist, owner of A Cut Above salon, spiritual medium, theater makeup artist, and a woman with cystic fibrosis. In this video she talks about her passion for her work, the challenges of running her own business, and the accommodations she has made to protect her health at work. Meet Kasey!

Filmed by Brandon Delgado

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Kasey Schumacher is a licensed cosmetologist, owner of A Cut Above salon, spiritual medium, theater makeup artist, and a woman with cystic fibrosis. In this video she talks about her passion for her work, the challenges of running her own business, and the accommodations she has made to protect her health at work. Meet Kasey!

Filmed by Brandon Delgado

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

In May, 2019, a group of CF advocates, including individuals with CF, parents of children with CF, and CF clinicians, gathered in Sacramento, California, to meet with their state assembly members and senators and raise awareness of CF and the challenges experienced by those living with the disease, including access to therapies and care. The day culminated with the Senate passing a resolution declaring May to be Cystic Fibrosis Awareness Month in the State of California. In this video, advocates share their reasons for participating in this impactful day.

Filmed and edited by Brandon Delgado.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA.

Break The Limits by Unwritten Stories | https://soundcloud.com/unwritten-stories
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US

In May, 2019, a group of CF advocates, including individuals with CF, parents of children with CF, and CF clinicians, gathered in Sacramento, California, to meet with their state assembly members and senators and raise awareness of CF and the challenges experienced by those living with the disease, including access to therapies and care. The day culminated with the Senate passing a resolution declaring May to be Cystic Fibrosis Awareness Month in the State of California. In this video, advocates share their reasons for participating in this impactful day.

Filmed and edited by Brandon Delgado.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA.

Break The Limits by Unwritten Stories | https://soundcloud.com/unwritten-stories
Music promoted by https://www.free-stock-music.com
Creative Commons Attribution-ShareAlike 3.0 Unported
https://creativecommons.org/licenses/by-sa/3.0/deed.en_US

Alan Verkman, MD, PhD, has changed the face of cystic fibrosis therapies. For over 30 years, Dr. Verkman, a Professor of Medicine and the Director of the CF Research Development Program at UC San Francisco. has advanced our understanding of the disease. At CFRI's 32nd National CF Education Conference, Dr. Verkman received the Paul Quinton Cystic Fibrosis Research Legacy Award. In this film, Dr. Verkman gives a tour of his lab at UC San Francisco, while sharing an update on his work.
Filmed and edited by Brandon Delgado.
CFRI Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Alan Verkman, MD, PhD, has changed the face of cystic fibrosis therapies. For over 30 years, Dr. Verkman, a Professor of Medicine and the Director of the CF Research Development Program at UC San Francisco. has advanced our understanding of the disease. At CFRI's 32nd National CF Education Conference, Dr. Verkman received the Paul Quinton Cystic Fibrosis Research Legacy Award. In this film, Dr. Verkman gives a tour of his lab at UC San Francisco, while sharing an update on his work.
Filmed and edited by Brandon Delgado.
CFRI Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Russell Wise, PharmD, BCPPS, of Stanford Children's Health, discusses the use of herbal therapies and essential oils as a complementary therapy for cystic fibrosis. Dr. Wise addresses the growing use of herbal supplements, vitamins and essential oils by those with CF. He highlights those products which may be of benefit, while giving cautionary tips to ensure that those using these therapies are purchasing from sources with some form of quality control.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Filmed by Brandon Delgado.

Jane Mitchell, mother of a daughter with cystic fibrosis, shares her experience using essential oils as a complementary therapy for her daughter Hannah, as well as for her entire family. She shares what oils have helped for specific symptoms, and addresses the importance of selecting quality brands to ensure safety.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Filmed by Brandon Delgado.

Russell Wise, PharmD, BCPPS, of Stanford Children's Health, discusses the use of herbal therapies and essential oils as a complementary therapy for cystic fibrosis. Dr. Wise addresses the growing use of herbal supplements, vitamins and essential oils by those with CF. He highlights those products which may be of benefit, while giving cautionary tips to ensure that those using these therapies are purchasing from sources with some form of quality control.

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Filmed by Brandon Delgado.