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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
May 22, 2019
May 22, 2019
18 min
Jane Mitchell, mother of a daughter with cystic fibrosis, shares her experience using essential oils as a complementary therapy for her daughter Hannah, as well as for her entire family. She shares what oils have helped for specific symptoms, and addresses the importance of selecting quality brands to ensure safety.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Filmed by Brandon Delgado.
Apr 16, 2019
Apr 16, 2019
17 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this fifth episode, we discuss our favorite scenes from the film and why they resonated.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
14 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this fourth episode, as "CF insiders" we explore what drove us a bit crazy in terms of medical inaccuracies in the film.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
16 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this third episode, we explore what type of message the "stealing a foot from CF" sends to the CF community.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
11 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our CF Community Voices playlist, but in this second episode, we explore the portrayal of the those with CF in the film.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
15 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our CF Community Voices playlist, but in this first episode, we explore the impact of the film upon the general public and the CF community.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
17 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this fifth episode, we discuss our favorite scenes from the film and why they resonated.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
14 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this fourth episode, as "CF insiders" we explore what drove us a bit crazy in terms of medical inaccuracies in the film.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
16 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our YouTube CF Community Voices playlist, but in this third episode, we explore what type of message the "stealing a foot from CF" sends to the CF community.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 16, 2019
Apr 16, 2019
11 min
CFRI hosted an online Town Hall Discussion on the film "Five Feet Apart," during which participants from around the U.S. joined in via Zoom. The discussion was broken into five topics. The full recording is available on our CF Community Voices playlist, but in this second episode, we explore the portrayal of the those with CF in the film.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.