The CFRI CF Community Voices Podcast

Financial Resources for the CF Community #1 (Audio): Income Support - Tiffany Raffino, LCSW

In this first segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers income assitance programs to help cover the high medical costs associated with the disease. These include Medicaid, SSDI, caregiver income support, state and county programs. 

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.

Hemoptysis and CF - Paul Mohabir, MD - Video

Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

Hemoptysis and CF - Paul Mohabir, MD Audio

Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

Staying Positive through Declining PFTs: My Pre-Double Lung Transplant Experience - Elyse Elconin Goldberg - Video

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring video podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

Staying Positive through Declining PFTs: My Pre-Double Lung Transplant Experience - Audio

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring audio podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

Personal Perspectives from a CF Respiratory Therapist

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Respiratory Therapy Options & Cleaning Your Nebs

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Personal Perspectives from a CF Respiratory Therapist (Audio)

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Respiratory Therapy Options & Cleaning Your Nebs (Audio)

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Coping with Your Child's Hospitalization: Tips From a Personal Expert

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA