The CFRI CF Community Voices Podcast

Part 2 Strength Matters: Positional Breathing During Respiratory Treatment - Taylor Lewis MA, CSCS, PES, PRT, RKC II

Strength Matters: Positional Breathing During Respiratory Treatment - Taylor Lewis MA, CSCS, PES, PRT, RKC II

What to Expect When You're Expectorating: The Bugs & Drugs of CF Lung Infections- Lucas Hoffman, MD, PhD

Lucas Hoffman, MD, PhD, from the University of Washington and Seattle Children’s Hospital, in Seattle, Washington, a noted expert on pathogens commonly found in the CF lung, discusses what is known - and not known - about these pathogens and their potential treatment. The full title of his talk: What to Expect When You're Expectorating - The Bugs and Drugs of CF Respiratory Infections. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

What Gets in the Way? Understanding & Supporting Treatment Adherence in CF - Kristin Riekert, PhD

Kristin A. Riekert, PhD, an expert on health regimen adherence issues who is from The Johns Hopkins School of Medicine in Baltimore, Maryland elaborated on adherence barriers and strategies for success for members of the cystic fibrosis community. This presentation was given at CFRI's 30th National Cystic Fibrosis Family Education Conference on July 28, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

CF Beyond the Lungs: The Role of Physical Therapy - Karen von Berg, DPT, PT

Karen von Berg, DPT, PT, Johns Hopkins School of Medicine, Baltimore, Maryland, gave a comprehensive overview of the vital role that physical therapy plays in the health and well-being of those with cystic fibrosis. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

PART 2 - Mind Body Therapies in Cystic Fibrosis Care - John Mark, MD

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

PART 1 Mind Body Therapies in Cystic Fibrosis Care - John Mark, MD

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

CF Research Update 2017: Crossing the Bridge to a Cure - John P. Clancy, MD

John P. Clancy, MD, CF pulmonologist and researcher from Cincinnati Children’s Hospital, Cincinnati, Ohio provides a comprehensive overview of current cystic fibrosis therapies and potential new therapies that are advancing in the CF research pipeline. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 29, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

PART 2 Belonging & Identity: Growing Up with Cystic Fibrosis - Isa Stenzel Byrnes, LCSW, MPH

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

PART 1 Belonging & Identity: Growing Up with Cystic Fibrosis - Isa Stenzel Byrnes, LCSW, MPH

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.