The CFRI CF Community Voices Podcast

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring video podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring audio podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA