The CFRI CF Community Voices Podcast

PART 2 Belonging & Identity: Growing Up with Cystic Fibrosis - Isa Stenzel Byrnes, LCSW, MPH

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

PART 1 Belonging & Identity: Growing Up with Cystic Fibrosis - Isa Stenzel Byrnes, LCSW, MPH

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Beyond Cystic Fibrosis: Adult Health Issues in CF - Cathy Chacon, RN

Cathy Chacon, RN, BSN, presents at CFRI's 2017 National CF Family Education Conference on health issues impacting those with cystic fibrosis including bone health, diabetes, reproductive health, and cancer screening.
Ms. Chacon is the Adult CF Nurse Coordinator at National Jewish Health in Denver, Colorado. This presentation took place on July 29, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Traveling the World with CF - Scott Pinner, MD

Traveling with CF: Tips to Be Prepared - Mary Helmers, RN

Traveling the World with CF - Scott Pinner, MD

Traveling with CF: Tips to Be Prepared - Mary Helmers, RN

Finding Balance as a CF Mom - Lisa Greene, MA

Diagnosis Stories - Darlene Batchelder & Robin Modlin

Diagnosis Stories - Darlene Batchelder & Robin Modlin