The CFRI CF Community Voices Podcast

John P. Clancy, MD, CF pulmonologist and researcher from Cincinnati Children’s Hospital, Cincinnati, Ohio provides a comprehensive overview of current cystic fibrosis therapies and potential new therapies that are advancing in the CF research pipeline. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 29, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Karen von Berg, DPT, PT, Johns Hopkins School of Medicine, Baltimore, Maryland, gave a comprehensive overview of the vital role that physical therapy plays in the health and well-being of those with cystic fibrosis. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

Paul Quinton, PhD, presents on forty years of cystic fibrosis research breakthroughs at CFRI's 30th annual Cystic Fibrosis Family Education Conference, on July 29, 2017.
Dr. Quinton is Emeritus Nancy Olmstead Chair, Pediatric Respiratory Medicine, School of Medicine, UC San Diego, La Jolla, CA.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Kristin A. Riekert, PhD, an expert on health regimen adherence issues who is from The Johns Hopkins School of Medicine in Baltimore, Maryland elaborated on adherence barriers and strategies for success for members of the cystic fibrosis community. This presentation was given at CFRI's 30th National Cystic Fibrosis Family Education Conference on July 28, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Cathy Chacon, RN, BSN, presents at CFRI's 2017 National CF Family Education Conference on health issues impacting those with cystic fibrosis including bone health, diabetes, reproductive health, and cancer screening.
Ms. Chacon is the Adult CF Nurse Coordinator at National Jewish Health in Denver, Colorado. This presentation took place on July 29, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Ray Poole, author of "Lessons from a CF Cornerman," shares the inspiring story of his wife's battle with cystic fibrosis, and the life saving double lung transplant that has changed their lives. This presentation was given at CFRI's 30th National Cystic Fibrosis Family Education Conference on July 28, 2017.

Sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Paul Quinton, PhD, presents on forty years of cystic fibrosis research breakthroughs at CFRI's 30th annual Cystic Fibrosis Family Education Conference, on July 29, 2017.
Dr. Quinton is Emeritus Nancy Olmstead Chair, Pediatric Respiratory Medicine, School of Medicine, UC San Diego, La Jolla, CA.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

Lucas Hoffman, MD, PhD, from the University of Washington and Seattle Children’s Hospital, in Seattle, Washington, a noted expert on pathogens commonly found in the CF lung, discusses what is known - and not known - about these pathogens and their potential treatment. The full title of his talk: What to Expect When You're Expectorating - The Bugs and Drugs of CF Respiratory Infections. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.