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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
May 23, 2018
May 23, 2018
5 min
May is Cystic Fibrosis Awareness Month. This video documents the power of CF advocacy, during CFRI's advocacy and awareness day at the Capitol in Sacramento, California, when the State Senate passed a resolution declaring May to be CF Awareness Month in California. Individuals with CF, as well as parents, siblings, and friends of those with CF, met with their representatives to raise awareness and encourage support for access to therapies and quality care.
Filmed and edited by Brandon Delgado.
CF Community Voices is made possible through grants by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Music: https://www.bensound.com
May 23, 2018
May 23, 2018
5 min
May is Cystic Fibrosis Awareness Month. This video documents the power of CF advocacy, during CFRI's advocacy and awareness day at the Capitol in Sacramento, California, when the State Senate passed a resolution declaring May to be CF Awareness Month in California. Individuals with CF, as well as parents, siblings, and friends of those with CF, met with their representatives to raise awareness and encourage support for access to therapies and quality care.
Filmed and edited by Brandon Delgado.
CF Community Voices is made possible through grants by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Music: https://www.bensound.com
Apr 25, 2018
Apr 25, 2018
23 min
In this first segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers income assitance programs to help cover the high medical costs associated with the disease. These include Medicaid, SSDI, caregiver income support, state and county programs.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 25, 2018
Apr 25, 2018
21 min
In this second segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers strategies for covering the high medical costs associated with the disease. These include insurance plans, hospital cost negotiations, and medication assistance through foundations and pharmaceutical company programs.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 25, 2018
Apr 25, 2018
26 min
In this third segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers the extensive range of support programs to help those living with CF. These include CFRI's programs, private foundations, scholarships, "wish" organizations for children and adults, and much more.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 25, 2018
Apr 25, 2018
26 min
In this third segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers the extensive range of support programs to help those living with CF. These include CFRI's programs, private foundations, scholarships, "wish" organizations for children and adults, and much more.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 25, 2018
Apr 25, 2018
21 min
In this second segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers strategies for covering the high medical costs associated with the disease. These include insurance plans, hospital cost negotiations, and medication assistance through foundations and pharmaceutical company programs.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Apr 25, 2018
Apr 25, 2018
23 min
In this first segment of her comprehensive podcast on financial resources for the CF community, Tifffany Raffino, LCSW, Clinical CF Social Worker at UC San Francisco, covers income assitance programs to help cover the high medical costs associated with the disease. These include Medicaid, SSDI, caregiver income support, state and county programs.
CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA.
Mar 29, 2018
Mar 29, 2018
44 min
Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.
Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.
Mar 29, 2018
Mar 29, 2018
44 min
Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.
Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.