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Episodes
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Episodes
Wednesday Jan 31, 2018
Wednesday Jan 31, 2018
Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA
Wednesday Jan 31, 2018
Wednesday Jan 31, 2018
Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA
Wednesday Jan 31, 2018
Wednesday Jan 31, 2018
Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.
Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA
Friday Jan 05, 2018
Friday Jan 05, 2018
Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.
Friday Jan 05, 2018
Friday Jan 05, 2018
Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.
Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.
Friday Dec 08, 2017
Friday Dec 08, 2017
Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.
Friday Dec 08, 2017
Friday Dec 08, 2017
Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.
Wednesday Nov 15, 2017
Wednesday Nov 15, 2017
Wednesday Oct 25, 2017
Wednesday Oct 25, 2017
Jacob Fraker, CFRI's Legislative Analyst who lives with CF, discusses the development of his political awareness and advocacy efforts on behalf of the CF community, rare disease community and LGBTQ community.